| Joubert Syndrome Foundation & Related Cerebellar Disorders 414 Hundgerford Drive Suite 252 Rockville, MD 20850 info@jsfrcd.org http://www.jsfrcd.org Tel: 614-864-1362 |
The Arc of the United States 1010 Wayne Avenue Suite 650 Silver Spring, MD 20910 Info@thearc.org http://www.thearc.org Tel: 301-565-3842 Fax: 301-565-3843 or -5342 |
| National Organization for Rare Disorders (NORD) P.O. Box 1968 (55 Kenosia Avenue) Danbury, CT 06813-1968 orphan@rarediseases.org http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291 |