Leukodystrophy Organizations

National Organization for Rare Disorders (NORD) P.O. Box 1968 (55 Kenosia Avenue) Danbury, CT   06813-1968 orphan@rarediseases.org http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291	National Tay-Sachs and Allied Diseases Association 2001 Beacon Street Suite 204 Brighton, MA   02135 info@ntsad.org http://www.ntsad.org Tel: 617-277-4463 800-90-NTSAD (906-8723) Fax: 617-277-0134
United Leukodystrophy Foundation 2304 Highland Drive Sycamore, IL   60178 office@ulf.org http://www.ulf.org Tel: 815-895-3211 800-728-5483 Fax: 815-895-2432	Hunter's Hope Foundation [A Leukodystrophy Resource] P.O. Box 643 Orchard Park, NY   14127 info@huntershope.org http://www.huntershope.org Tel: 716-667-1200 877-984-HOPE (-4673) Fax: 716-667-1212
Myelin Project 1400 Wallace Blvd. Suite 258 Amarillo, TX   79106 candace.root@myelin.org http://www.myelin.org Tel: 806-356-4693 800-869-3546 Fax: 806-356-4694	MLD Foundation 21345 Miles Drive West Linn, OR   97068 info@MLDFoundation.org http://www.MLDfoundation.org Tel: 800-617-8387